{"id":1443,"date":"2013-06-04T09:59:41","date_gmt":"2013-06-03T23:59:41","guid":{"rendered":"https:\/\/childethics.com\/?p=1443"},"modified":"2015-05-29T04:51:04","modified_gmt":"2015-05-28T18:51:04","slug":"best-practices-for-health-research-involving-children-and-adolescents-genetic-pharmaceutical-longitudinal-studies-and-palliative-care-research-2","status":"publish","type":"post","link":"https:\/\/childethics.com\/library\/other-literature\/best-practices-for-health-research-involving-children-and-adolescents-genetic-pharmaceutical-longitudinal-studies-and-palliative-care-research-2\/","title":{"rendered":"Best practices for health research involving children and adolescents: Genetic, pharmaceutical, longitudinal studies and palliative care research."},"content":{"rendered":"<p>Avard, D., Black, L., Samu\u00ebl, J., Griener, G., &amp; Knoppers, B. M. (2012). <i>Best practices for health research involving children and adolescents: Genetic, pharmaceutical, longitudinal studies and palliative care research<\/i>. Montreal: Centre of Genomics and Policy, McGill University and Maternal Infant Child and Youth Research Network (MICYRN). With the collaboration of Institute for Human Development, Child and Youth Health, Canadian Institutes of Health Research and Ethics Office, Canadian Institutes of Health Research.<br \/>\n<!--more--><br \/>\nDescription: These Best Practices provide an overview of international and Canadian ethical norms, reflecting the current situation in Canada regarding health research involving children and adolescents. For a more critical analysis of these norms, please refer to Pediatric Research in Canada (D. Avard, J. Samu\u00ebl and B.M. Knoppers (eds), Les \u00c9ditions Th\u00e9mis, 2009) and La recherche clinique avec les enfants: \u00e0 la crois\u00e9e de l\u2019\u00e9thique et du droit -Belgique, France, Qu\u00e9bec (ML Delfosse, MH Parizeau et JP Amann (\u00e9d.) PUL &amp; Anth\u00e9mis, 2009).<\/p>\n<p>These Best Practices also do not provide specific guidance for research involving the First Nations, Inuit and M\u00e9tis peoples of Canada. For research involving Aboriginal children and youth, the Best Practices should be used in conjunction with the Tri-Council Policy Statement, Chapter 9, \u201cResearch Involving the First Nations, Inuit and M\u00e9tis Peoples of Canada\u201d (http:\/\/www.pre.ethics.gc.ca\/eng\/policy-politique\/initiatives\/tcps2-eptc2\/chapter9-chapitre9\/).<\/p>\n<p>The full guide is available in English and French via the Publisher&#8217;s Link below.<\/p>\n<a href=\"http:\/\/www.pediagen.org\/toolbox\" target=\"_blank\" style=\"color:primary; text-decoration: none; padding: 10px 20px; border: 1px solid #ccc; display: inline-block;\" rel=\"nofollow noopener\">Publisher&#8217;s Link<\/a>\n","protected":false},"excerpt":{"rendered":"<p>Avard, D., Black, L., Samu\u00ebl, J., Griener, G., &amp; Knoppers, B. M. (2012). Best practices for health research involving children and adolescents: Genetic, pharmaceutical, longitudinal studies and palliative care research. Montreal: Centre of Genomics and Policy, McGill University and Maternal Infant Child and Youth Research Network (MICYRN). With the collaboration of Institute for Human Development, [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[10],"tags":[47,12,13,46,48],"class_list":["post-1443","post","type-post","status-publish","format-standard","hentry","category-other-literature","tag-canada","tag-ethical-considerations","tag-guidelines","tag-health-and-biomedical-research","tag-north-america"],"_links":{"self":[{"href":"https:\/\/childethics.com\/wp-json\/wp\/v2\/posts\/1443","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/childethics.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/childethics.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/childethics.com\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/childethics.com\/wp-json\/wp\/v2\/comments?post=1443"}],"version-history":[{"count":0,"href":"https:\/\/childethics.com\/wp-json\/wp\/v2\/posts\/1443\/revisions"}],"wp:attachment":[{"href":"https:\/\/childethics.com\/wp-json\/wp\/v2\/media?parent=1443"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/childethics.com\/wp-json\/wp\/v2\/categories?post=1443"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/childethics.com\/wp-json\/wp\/v2\/tags?post=1443"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}