{"id":6733,"date":"2021-12-08T00:09:40","date_gmt":"2021-12-07T13:09:40","guid":{"rendered":"https:\/\/childethics.com\/?p=6733"},"modified":"2021-12-08T00:26:45","modified_gmt":"2021-12-07T13:26:45","slug":"comic-strips-help-children-understand-medical-research-targeting-the-informed-consent-procedure-to-childrens-needs","status":"publish","type":"post","link":"https:\/\/childethics.com\/library\/comic-strips-help-children-understand-medical-research-targeting-the-informed-consent-procedure-to-childrens-needs\/","title":{"rendered":"Comic strips help children understand medical research: Targeting the informed consent procedure to children&#8217;s needs."},"content":{"rendered":"<p>Grootens-Wiegers, P., de Vries, M. C., van Beusekom, M. M., van Dijck, L., &#038; van den Broek, J. M. (2015). Comic strips help children understand medical research: targeting the informed consent procedure to children&#8217;s needs. <em>Patient education and counseling,<\/em> 98(4), pp. 518-524.<\/p>\n<p>Abstract<br \/>\nObjective<br \/>\nChildren involved in medical research often fail to comprehend essential research aspects. In order to improve information provision, a participatory approach was used to develop new information material explaining essential concepts of medical research.<\/p>\n<p>Methods<br \/>\nA draft of a comic strip was developed by a science communicator in collaboration with pediatricians. The draft was presented to children participating in a clinical trial and to two school classes. Children were consulted for further development in surveys and interviews. Subsequently, the material was revised and re-evaluated in four school classes with children of varying ages and educational levels.<\/p>\n<p>Results<br \/>\nIn the first evaluation, children provided feedback on the storyline, wording and layout. Children thought the comic strip was \u2018fun\u2019 and \u2018informative\u2019. Understanding of 8 basic research aspects was on average 83% and all above 65%, illustrating that children understood and remembered key messages.<\/p>\n<p>Conclusion<br \/>\nA comic strip was developed to support the informed consent process. Children were consulted and provided feedback. The resulting material was well understood and accepted.<\/p>\n<p>Practice implications<br \/>\nInvolving children in the development of information material can substantially contribute to the quality of the material. Children were excited to participate and to \u2018be a part of science\u2019.<\/p>\n<p>Abstract reproduced with permission. This article was published in <em>Patient Education and Counseling<\/em>, 98(4) \u00a9 Copyright Elsevier, EACH (the International Association for Communication in Health Care) and ACH (the Academy of Communication in Healthcare).<\/p>\n<p>Extracts from the comic strip can be freely accessed via the &#8216;Open Access&#8217; link below.<\/p>\n<p><a href=\"https:\/\/doi.org\/10.1016\/j.pec.2014.12.005\" target=\"\u201d_blank\u201d\" style=\"color:primary; text-decoration: none; padding: 10px 20px; border: 1px solid #ccc; display: inline-block;\" rel=\"nofollow noopener\">Publisher&#8217;s Link<\/a><br \/>\n<a href=\"https:\/\/research.shu.ac.uk\/design4health\/wp-content\/uploads\/2013\/09\/D4H2013_Grootens-Wiegers_et_al.pdf\" target=\"\u201d_blank\u201d\" style=\"color:primary; text-decoration: none; padding: 10px 20px; border: 1px solid #ccc; display: inline-block;\" rel=\"nofollow noopener\">Open Access<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Grootens-Wiegers, P., de Vries, M. C., van Beusekom, M. M., van Dijck, L., &#038; van den Broek, J. M. (2015). Comic strips help children understand medical research: targeting the informed consent procedure to children&#8217;s needs. Patient education and counseling, 98(4), pp. 518-524. Abstract Objective Children involved in medical research often fail to comprehend essential research [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6],"tags":[87,653,27,654,623],"class_list":["post-6733","post","type-post","status-publish","format-standard","hentry","category-library","tag-assent","tag-comic","tag-informed-consent","tag-innovative","tag-visual"],"_links":{"self":[{"href":"https:\/\/childethics.com\/wp-json\/wp\/v2\/posts\/6733","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/childethics.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/childethics.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/childethics.com\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/childethics.com\/wp-json\/wp\/v2\/comments?post=6733"}],"version-history":[{"count":0,"href":"https:\/\/childethics.com\/wp-json\/wp\/v2\/posts\/6733\/revisions"}],"wp:attachment":[{"href":"https:\/\/childethics.com\/wp-json\/wp\/v2\/media?parent=6733"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/childethics.com\/wp-json\/wp\/v2\/categories?post=6733"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/childethics.com\/wp-json\/wp\/v2\/tags?post=6733"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}